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Greg Brozeit's avatar

I love everything about this post. Direct, understandable, and the concluding discussion doesn't equivocate. Plus it underscores my growing belief that patient education shouldn't be all-consuming. A very few times a year -- and more often, every few years -- of getting information like this to discuss with your healthcare teams is much more helpful than treating disease information like it's a headline news feed that has to be consumed constantly. Take the time to digest information like this, it will be much more productive and more likely to remain sane.

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Jean Kollantai's avatar

Thank you. After my diagnosis 6+ years ago with the kappa-only version of mm, plus GI amyloid, I received CyBorD and did very well but developed severe neuropathy. That led to dara and 5 mg Rev, which kept me at very low numbers; but after seeing MRD numbers not be as low as they could be, I substituted venetoclax for Rev and it has been amazing. Still no relapse, ever, or illness--or sct. I found it interesting that the 11;14 people in the study did not do as well...would be interested in that other discussion you mentioned. Totally agree with staying away from bortezomib!!!

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